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42 U.S.C. § 280iDevelopmental disabilities surveillance and research program

submitted 82 years ago by Pub. L. 109-416 to r/title-42-THE-PUBLIC-HEALTH-AND-WELFARE · 639 words · no verdicts yet

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The CDC may fund state efforts to track autism and other developmental disabilities. It can also fund research centers studying what causes these conditions. The program is set to end after September 30, 2029.

(a) Autism spectrum disorder and other developmental disabilities. (1) In general. The Secretary, through CDC, may fund grants or cooperative agreements to eligible entities to collect, analyze, and report state data on children and adults with autism spectrum disorder (ASD) and other developmental disabilities. A funded entity must help develop and coordinate state ASD and developmental-disability surveillance in its region. The Secretary may give direct technical help instead of cash. (2) Data standards. Entities must report data following guidelines the CDC Director sets after consulting state, local, and tribal health officials, private researchers, and disability advocates. (3) Eligibility. To qualify, an entity must be a public or nonprofit private group (such as a state or local health department, university, other school, tribe, or tribal organization) and apply as the Secretary requires. (b) Centers of excellence in autism spectrum disorder epidemiology. (1) In general. Subject to available funding, the Secretary, through CDC, must fund grants or cooperative agreements to set up or support regional centers studying how many people have ASD and other developmental disabilities, and what's linked to or causes them, across all ages. (2) Requirements. To qualify, an applicant must agree that its center will (A) collect, analyze, and report data under CDC guidelines set after consulting relevant officials, researchers, and advocates; (B) build expertise in specialized research areas, such as genetics, epigenetics, environmental exposure, and immunology; and (C) find cases and comparison groups through its surveillance system and study what raises the risk of these disabilities. (c) Federal response. The Secretary must coordinate the federal response when state health, mental health, or education officials ask for help with possible ASD or developmental disability clusters. (d) Definitions. (1) "Indian Tribe" and "Tribal organization" carry the meaning given in 25 U.S.C. § 1603. (2) "Other developmental disabilities" carries the meaning of "developmental disability" in 42 U.S.C. § 15002(8). (3) "State" means each state, the District of Columbia, Puerto Rico, American Samoa, Guam, the Northern Mariana Islands, the Virgin Islands, and the Trust Territory of the Pacific Islands. (e) Sunset. This section stops applying after September 30, 2029.
the actual law source: uscode.house.gov ↗public domain
(a) Autism spectrum disorder and other developmental disabilities
(1) In general

The Secretary, acting through the Director of the Centers for Disease Control and Prevention, may award grants or cooperative agreements to eligible entities for the collection, analysis, and reporting of State epidemiological data for children and adults with autism spectrum disorder and other developmental disabilities. An eligible entity shall assist with the development and coordination of State autism spectrum disorder and other developmental disability surveillance efforts within a region. In making such awards, the Secretary may provide direct technical assistance in lieu of cash.

(2) Data standards

In submitting epidemiological data to the Secretary pursuant to paragraph (1), an eligible entity shall report data according to guidelines prescribed by the Director of the Centers for Disease Control and Prevention, after consultation with relevant State, local, and Tribal public health officials, private sector developmental disability researchers, and advocates for individuals with autism spectrum disorder and other developmental disabilities.

(3) Eligibility

To be eligible to receive an award under paragraph (1), an entity shall be a public or nonprofit private entity (including a health department of a State or a political subdivision of a State, a university, any other educational institution, an Indian Tribe, or a Tribal organization), and submit to the Secretary an application at such time, in such manner, and containing such information as the Secretary may require.

(b) Centers of excellence in autism spectrum disorder epidemiology
(1) In general

The Secretary, acting through the Director of the Centers for Disease Control and Prevention, shall, subject to the availability of appropriations, award grants or cooperative agreements for the establishment or support of regional centers of excellence in autism spectrum disorder and other developmental disabilities epidemiology for the purpose of collecting and analyzing information on the number, incidence, correlates, and causes of autism spectrum disorder and other developmental disabilities for children and adults across the lifespan.

(2) Requirements

To be eligible to receive a grant or cooperative agreement under paragraph (1), an entity shall submit to the Secretary an application containing such agreements and information as the Secretary may require, including an agreement that the center to be established or supported under the grant or cooperative agreement shall operate in accordance with the following:

(A)

The center will collect, analyze, and report autism spectrum disorder and other developmental disability data according to guidelines prescribed by the Director of the Centers for Disease Control and Prevention, after consultation with State, local, and Tribal public health officials, private sector developmental disability researchers, advocates for individuals with autism spectrum disorder, and advocates for individuals with other developmental disabilities.

(B)

The center will develop or extend an area of special research expertise (including genetics, epigenetics, and epidemiological research related to environmental exposures), immunology, and other relevant research specialty areas.

(C)

The center will identify eligible cases and controls through its surveillance system and conduct research into factors which may cause or increase the risk of autism spectrum disorder and other developmental disabilities.

(c) Federal response

The Secretary shall coordinate the Federal response to requests for assistance from State health, mental health, and education department officials regarding potential or alleged autism spectrum disorder or developmental disability clusters.

(d) Definitions

In this part:

(1) Indian Tribe; Tribal organization

The terms “Indian Tribe” and “Tribal organization” have the meanings given such terms in section 1603 of title 25.

(2) Other developmental disabilities

The term “other developmental disabilities” has the meaning given the term “developmental disability” in section 15002(8) of this title.

(3) State

The term “State” means each of the several States, the District of Columbia, the Commonwealth of Puerto Rico, American Samoa, Guam, the Commonwealth of the Northern Mariana Islands, the Virgin Islands, and the Trust Territory of the Pacific Islands.

(e) Sunset

This section shall not apply after September 30, 2029.

Source credit: (July 1, 1944, ch. 373, title III, § 399AA, as added Pub. L. 109–416, § 3(a), Dec. 19, 2006, 120 Stat. 2822; amended Pub. L. 112–32, § 2(1), Sept. 30, 2011, 125 Stat. 361; Pub. L. 113–157, § 3, Aug. 8, 2014, 128 Stat. 1831; Pub. L. 116–60, § 3(a), Sept. 30, 2019, 133 Stat. 1111; Pub. L. 118–83, div. B, title II, § 201(a), Sept. 26, 2024, 138 Stat. 1537; Pub. L. 118–180, § 3(a), Dec. 23, 2024, 138 Stat. 2615.)

history & why it existsrecord from the source credit
  • 1944Enacted · Pub. L. 109-416 · 120 Stat. 2822
  • 2011Amended · Pub. L. 112-32 · 125 Stat. 361
  • 2014Amended · Pub. L. 113-157 · 128 Stat. 1831
  • 2019Amended · Pub. L. 116-60 · 133 Stat. 1111
  • 2024Amended · Pub. L. 118-83 · 138 Stat. 1537
  • 2024Amended · Pub. L. 118-180 · 138 Stat. 2615

A history note hasn’t been published yet. The record shows enactment by Pub. L. 109-416 on 1944-07-01.

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