42 U.S.C. § 280e–3a — National childhood cancer registry

(a) In general. The Secretary, acting through the Director of the Centers for Disease Control and Prevention, may award grants to state cancer registries. The money helps build up the registries' ability to collect information, so people can better understand how cancer occurs in children, adolescents, and young adults. Registries may be updated to include every occurrence of these cancers within a time period the Secretary sets. (b) Activities. Grant money may be used for: (1) finding, recruiting, and training people who could report childhood, adolescent, and young-adult cancer cases; (2) developing electronic-reporting practices so these cases are included in state registries early; (3) collecting deidentified (name-removed) data and sending it to the CDC for a national database on these cancers; and (4) improving state registries and that national database, including to help include cases earlier. (c) Coordination. So that federally supported efforts work as efficiently and effectively as possible, the Secretary must coordinate the programs under this section with other federally supported cancer registry programs and with the activities under section 285a–11(a) of this title, as appropriate. (d) Informed consent and privacy requirements and coordination with existing programs. Activities under this section are subject to: section 552a of title 5 (the Privacy Act); the regulations issued under section 264(c) of the Health Insurance Portability and Accountability Act of 1996; any applicable federal and state informed-consent regulations; any other applicable federal and state laws protecting patient privacy; and section 280e(d)(4) of this title.