42 U.S.C. § 300mm–3 — Uniform data collection and analysis

The WTC Program Administrator^* shall provide for the uniform collection of data, including claims data (and analysis of data and regular reports to the Administrator^*) on the prevalence of WTC-related health conditions and the identification of new WTC-related health conditions. Such data shall be collected for all individuals provided monitoring or treatment^* benefits under part B and regardless of their place of residence or Clinical Center of Excellence^* through which the benefits are provided. The WTC Program^* Administrator shall provide, through the Data Centers or otherwise, for the integration of such data into the monitoring and treatment program activities under this subchapter.

Each Clinical Center of Excellence shall collect data described in subsection (a) and report such data to the corresponding Data Center^* for analysis by such Data Center.

The WTC Program Administrator shall provide for collaboration between the Data Centers and the World Trade Center Health Registry described in section 300mm–52 of this title.

The data collection and analysis under this section shall be conducted and maintained in a manner that protects the confidentiality of individually identifiable health information consistent with applicable statutes and regulations, including, as applicable, HIPAA privacy and security law (as defined in section 300jj–19(a)(2) of this title) and section 552a of title 5.