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42 U.S.C. § 285sPurpose of Institute

submitted 82 years ago by Pub. L. 103-43 to r/title-42-THE-PUBLIC-HEALTH-AND-WELFARE · 277 words · no verdicts yet

in plain englishAI-generated · not legal advice

This Institute maps and studies the human genome. It funds genome research, training, and public outreach. It must spend at least 5 percent of its funds on ethical and legal issues from genome research.

(a) General purpose: The general purpose of the National Human Genome Research Institute is to figure out the structure and function of the human genome, including mapping and sequencing individual genes. This includes (1) planning and coordinating the genome project's research goals; (2) reviewing and funding research proposals; (3) building training programs; (4) coordinating international genome research; (5) telling the public about advances in genome science; and (6) reviewing and funding proposals that address the ethical and legal issues tied to the genome project, including legal issues about patents. (b) Research training: The Director may run and support research training that (1) doesn't already get fellowship support under section 288, and (2) is not residency training for physicians or other health professionals. (c) Amount available for ethical and legal issues: (1) Except as described in paragraph (2), the Director must set aside at least 5 percent of the money appropriated each year for subsection (a) to fund the work described in subsection (a)(6) — addressing ethical and legal issues. (2) That 5 percent requirement does not apply for a given fiscal year if the Director certifies to the House Committee on Energy and Commerce and the Senate Committee on Labor and Human Resources that not enough proposals about ethical issues met the requirements of sections 289 and 289a.
the actual law source: uscode.house.gov ↗public domain
(a) General purpose

The general purpose of the National Human Genome Research Institute (in this subpart referred to as the “Institute”) is to characterize the structure and function of the human genome, including the mapping and sequencing of individual genes. Such purpose includes—

(1)

planning and coordinating the research goal of the genome project;

(2)

reviewing and funding research proposals;

(3)

developing training programs;

(4)

coordinating international genome research;

(5)

communicating advances in genome science to the public; and

(6)

reviewing and funding proposals to address the ethical and legal issues associated with the genome project (including legal issues regarding patents).

(b) Research training

The Director of the Institute may conduct and support research training—

(1)

for which fellowship support is not provided under section 288 of this title; and

(2)

that is not residency training of physicians or other health professionals.

(c) Amount available for ethical and legal issues
(1)

Except as provided in paragraph (2), of the amounts appropriated to carry out subsection (a) for a fiscal year, the Director of the Institute shall make available not less than 5 percent for carrying out paragraph (6) of such subsection.

(2)

With respect to providing funds under subsection (a)(6) for proposals to address the ethical issues associated with the genome project, paragraph (1) shall not apply for a fiscal year if the Director of the Institute certifies to the Committee on Energy and Commerce of the House of Representatives, and to the Committee on Labor and Human Resources of the Senate, that the Director has determined that an insufficient number of such proposals meet the applicable requirements of sections 289 and 289a of this title.

Source credit: (July 1, 1944, ch. 373, title IV, § 464z–1, formerly § 485B, as added Pub. L. 103–43, title XV, § 1521(2), June 10, 1993, 107 Stat. 180; renumbered § 464z–1 and amended Pub. L. 109–482, title I, § 101(c)(4), Jan. 15, 2007, 120 Stat. 3681.)

history & why it existsrecord from the source credit
  • 1944Enacted · Pub. L. 103-43 · 107 Stat. 180
  • 2007Amended · Pub. L. 109-482 · 120 Stat. 3681

A history note hasn’t been published yet. The record shows enactment by Pub. L. 103-43 on 1944-07-01.

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