42 U.S.C. § 300b–13 — Interagency Coordinating Committee on Newborn and Child Screening
submitted 82 years ago by Pub. L. 110-204 to r/title-42-THE-PUBLIC-HEALTH-AND-WELFARE · 263 words · no verdicts yet
This section creates an Interagency Coordinating Committee made up of five federal health agency heads. The Committee studies existing data on heritable disorders and recommends regional research centers. It reports its recommendations to the Secretary and Congress.
(a) Purpose: This section exists to: (1) review existing programs and infrastructure — including birth-defects and developmental-disabilities work under section 247b–4 — to recommend programs for collecting, analyzing, and sharing data on the heritable disorders the Advisory Committee* (section 300b–10) recommends, including how common they are and the poor health outcomes they cause; and (2) recommend setting up regional centers to do applied research on effective ways to prevent those poor health outcomes, and to educate the public about them.
(b) Establishment: The Secretary* must set up an Interagency Coordinating Committee on Newborn and Child Screening to carry out this purpose.
(c) Composition: The Committee is made up of the Director* of the CDC, the Administrator* of the Health Resources and Services Administration, the Director of the Agency for Healthcare Research and Quality, the Commissioner of Food and Drugs, and the Director of the NIH — or people they designate.
(d) Activities: The Committee must: (1) report its recommendations, related to the purpose in subsection (a), to the Secretary and the relevant congressional committees; and (2) carry out any other activities the Secretary decides are appropriate.
It is the purpose of this section to—
assess existing activities and infrastructure, including activities on birth defects and developmental disabilities authorized under section 247b–4 of this title, in order to make recommendations for programs to collect, analyze, and make available data on the heritable disorders recommended by the Advisory Committee* on Heritable Disorders in Newborns and Children under section 300b–10 of this title, including data on the incidence and prevalence of, as well as poor health outcomes resulting from, such disorders; and
make recommendations for the establishment of regional centers for the conduct of applied epidemiological research on effective interventions to promote the prevention of poor health outcomes resulting from such disorders as well as providing information and education to the public on such effective interventions.
The Secretary* shall establish an Interagency Coordinating Committee on Newborn and Child Screening (referred to in this section as the “Interagency Coordinating Committee”) to carry out the purpose of this section.
The Interagency Coordinating Committee shall be composed of the Director* of the Centers for Disease Control and Prevention, the Administrator* of the Health Resources and Services Administration, the Director of the Agency for Healthcare Research and Quality, the Commissioner of Food and Drugs, and the Director of the National Institutes of Health, or their designees.
The Interagency Coordinating Committee shall—
report to the Secretary and the appropriate committees of Congress on its recommendations related to the purpose described in subsection (a); and
carry out other activities determined appropriate by the Secretary.
Source credit: (July 1, 1944, ch. 373, title XI, § 1114, as added Pub. L. 110–204, § 6, Apr. 24, 2008, 122 Stat. 710; amended Pub. L. 110–237, § 1(a)(6), May 27, 2008, 122 Stat. 1557; Pub. L. 113–240, § 7, Dec. 18, 2014, 128 Stat. 2855.)
- 1944Enacted · Pub. L. 110-204 · 122 Stat. 710
- 2008Amended · Pub. L. 110-237 · 122 Stat. 1557
- 2014Amended · Pub. L. 113-240 · 128 Stat. 2855
A history note hasn’t been published yet. The record shows enactment by Pub. L. 110-204 on 1944-07-01.
all 0 arguments · sorted by: best
no arguments yet — make the first case