42 U.S.C. § 244a — Materials and resources to increase education and awareness of cardiomyopathy among school administrators, educators, and families

(a) Materials and resources. Within 18 months after December 23, 2024, the Secretary, working with the Director of the Centers for Disease Control and Prevention, must create public education materials. These are meant for school administrators, educators, school health professionals, coaches, families, guardians, caregivers, and other appropriate people. The materials must cover: the signs, symptoms, and risk factors of high-risk cardiac conditions and genetic heart rhythm problems that can cause sudden cardiac arrest in children, teens, and young adults — including cardiomyopathy; long QT syndrome, Brugada syndrome, catecholaminergic polymorphic ventricular tachycardia, short QT syndrome, and Wolff-Parkinson-White syndrome; and any other high-risk cardiac conditions the Secretary identifies. The materials must also include guidelines on where to place automated external defibrillators (AEDs) in schools, early childhood programs, and child care centers; training information on AEDs and CPR; and recommendations for how these places can build a cardiac emergency response plan. (b) Dissemination of materials and resources. Within 30 months after December 23, 2024, the Secretary must share the materials from subsection (a) in three ways. First, through state educational agencies: the Secretary gives them the materials to pass along — the risk-and-symptom information to administrators, educators, health professionals, coaches, and families; the cardiomyopathy risk assessment (created under section 244b(b)(1)) to parents, guardians, and other caregivers; and the AED placement guidelines, training information, and cardiac emergency response plan recommendations to school administrators, educators, health professionals, and coaches. Second, the Secretary shares the materials directly with state and local health departments, pediatricians, hospitals, and other health professionals such as nurses and first responders. Third, the Secretary — through the CDC Director — must post the materials on the CDC's public website, and the Director is encouraged to keep adding useful cardiomyopathy information there. State educational agencies are also encouraged to build their own public webpages about cardiomyopathy and post the materials there too. (c) Definitions. "Cardiomyopathy" means a heart disease that affects the heart's muscle. Its symptoms can vary: some people have none at all, while others have a progressive condition that can cause fatigue, irregular heartbeats, heart failure, and potentially sudden cardiac death. Recognized types include dilated, hypertrophic, restrictive, arrhythmogenic right ventricular dysplasia, and left ventricular non-compaction cardiomyopathy. "Director" means the Director of the CDC. "Early childhood education program," "elementary school," and "secondary school" have the meanings given in section 7801 of title 20. A "school administrator" is a principal, director, manager, or other leader at an elementary school, secondary school, state-based early childhood program, or child care center. A "school health professional" is a health professional working at one of those same places.