42 U.S.C. § 244b — Activities relating to cardiomyopathy

(a) Report on CDC national cardiomyopathy activities. Within 18 months after December 23, 2024, the Secretary — acting through the CDC Director — must send Congress a report on what CDC's existing work has found about how common cardiomyopathy is and how it plays out across a person's life, from birth to adulthood. The report should focus especially on the natural course of the disease in both children and adults, and on estimates of how many emergency department visits and hospitalizations cardiomyopathy causes, again for both children and adults. This report must be made available to the public, but the Secretary must make sure the report follows all applicable federal and state privacy laws. (b) Improving risk assessments for individuals with cardiomyopathy. The Secretary must create and publish a cardiomyopathy risk assessment tool for both health care providers and individuals. At minimum, it must include: background information on how common cardiomyopathy is, how it affects health, and how it differs across all its forms in children, teens, and adults; a worksheet listing variables and conditions to help someone judge whether they are at risk; a separate worksheet listing variables and stages to help judge how far the disease has progressed in someone who has it; and guidelines on when people at risk, or with a family history of cardiomyopathy, should get screened. In building this tool, the CDC Director must ask for input from outside experts, including national patient advocacy groups that specialize in all forms of cardiomyopathy, medical professional societies that treat adults and children with the disease, and other relevant federal agencies. (c) Definition. In this section, "cardiomyopathy" means the same thing it means in section 244a.