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42 U.S.C. § 280i–3Reports to Congress

submitted 82 years ago by Pub. L. 109-416 to r/title-42-THE-PUBLIC-HEALTH-AND-WELFARE · 781 words · no verdicts yet

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The Secretary must send Congress several reports on autism spectrum disorder. These cover overall progress, mental health needs, and the transition to adulthood. Each report has a specific deadline and required content.

(a) Progress report. (1) In general. Within 4 years after September 30, 2024, the Secretary, working with other relevant agencies, must send a progress report on autism spectrum disorder (ASD) and other developmental disability activities to the Senate HELP Committee and the House Energy and Commerce Committee, and post it publicly on HHS's website. The report must cover the whole ASD population, including people with co-occurring conditions and their full range of support needs, including safety and well-being. (2) Contents. The report must include (A) progress implementing the Autism CARES Act of 2024; (B) how much money was spent implementing it; (C) how common ASD is, including trends over time; (D) the average age of diagnosis for children with ASD and other disabilities, how that's changed over the 4 years since December 23, 2024, and how it varies by group; (E) the average age treatment starts, with the same kind of trend and group information; (F) the average time between screening and diagnosis, and between diagnosis and treatment, again broken down by group where relevant; (G) how effective ASD and other developmental-disability treatments are, including by severity level where possible, and how age or other factors affect that; (H) how effective new or innovative treatment strategies are; (I) progress on the strategic plan from the Interagency Autism Coordinating Committee under section 280i–2(b); and (J) how states use home- and community-based services to help people with ASD and other developmental disabilities live, work, and take part in their communities. (b) Report on mental health needs across the lifespan. (1) In general. Within 2 years after December 23, 2024, the Secretary must send the same two committees a report on the mental health needs of people with ASD. (2) Contents. That report must include (A) an overview of relevant mental health policies, programs, laws, and research across the lifespan, and (B) recommendations to improve mental health outcomes and reduce disparities in mental health care, including on prevention, care coordination, and community-based services. (c) Update on young adults and youth transitioning to adulthood. Within 2 years after December 23, 2024, the Secretary, coordinating with other agencies as needed, must update the report required under a version of subsection (b) that existed before September 30, 2019 — added by the Autism CARES Act of 2014 — focusing on young adults with ASD and the challenges of moving from school-based services to adult services.
the actual law source: uscode.house.gov ↗public domain
(a) Progress report
(1) In general

Not later than 4 years after September 30, 2024, the Secretary, in consultation with other relevant Federal departments and agencies, shall prepare and submit to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives, and make publicly available, including through posting on the website of the Department of Health and Human Services, a progress report on activities related to autism spectrum disorder and other developmental disabilities. Such report shall include activities and research related to the entire population of individuals with autism spectrum disorder, including those individuals with co-occurring conditions and the full range of needs for supports and services, including such supports and services to ensure the safety, and promote the well-being, of such individuals.

(2) Contents

The report submitted under subsection (a) shall contain—

(A)

a description of the progress made in implementing the provisions of the Autism CARES Act of 2024;

(B)

a description of the amounts expended on the implementation of the amendments made by the Autism CARES Act of 2024;

(C)

information on the incidence and prevalence of autism spectrum disorder, including available information on the prevalence of autism spectrum disorder among children and adults, and identification of any changes over time with respect to the incidence and prevalence of autism spectrum disorder;

(D)

information on the average age of diagnosis for children with autism spectrum disorder and other disabilities, including how that age may have changed over the 4-year period beginning on December 23, 2024, and, as appropriate, how this age varies across population subgroups;

(E)

information on the average age for intervention for individuals diagnosed with autism spectrum disorder and other developmental disabilities, including how that age may have changed over the 4-year period beginning on December 23, 2024, and, as appropriate, how this age varies across population subgroups;

(F)

information on the average time between initial screening and then diagnosis or rule out for individuals with autism spectrum disorder or other developmental disabilities, as well as information on the average time between diagnosis and evidence-based intervention for individuals with autism spectrum disorder or other developmental disabilities and, as appropriate, on how such average time varies across population subgroups;

(G)

information on the effectiveness and outcomes of interventions for individuals diagnosed with autism spectrum disorder, including by severity level as practicable, and other developmental disabilities and how the age of the individual or other factors, such as demographic characteristics, may affect such effectiveness;

(H)

information on the effectiveness and outcomes of innovative and newly developed intervention strategies for individuals with autism spectrum disorder or other developmental disabilities;

(I)

a description of the actions taken to implement and the progress made on implementation of the strategic plan developed by the Interagency Autism Coordinating Committee under section 280i–2(b) of this title; and

(J)

information on how States use home- and community-based services and other supports to ensure that individuals with autism spectrum disorder and other developmental disabilities are living, working, and participating in their community.

(b) Report on the mental health needs of individuals with autism spectrum disorder across their lifespan
(1) In general

Not later than 2 years after December 23, 2024, the Secretary shall prepare and submit, to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives, a report concerning the mental health needs of individuals with autism spectrum disorder.

(2) Contents

The report submitted under paragraph (1) shall contain—

(A)

an overview of policies and programs relevant to the mental health of individuals with autism spectrum disorder across their lifespan, including an identification of existing Federal laws, regulations, policies, research, and programs; and

(B)

recommendations to improve mental health outcomes and address related disparities in mental health care for individuals with autism spectrum disorder, including prevention, care coordination, and community-based services.

(c) Update on young adults and youth transitioning to adulthood

Not later than 2 years after December 23, 2024, the Secretary, in coordination with other relevant Federal departments and agencies, as appropriate, shall prepare and submit to the Committee on Energy and Commerce of the House of Representatives and the Committee on Health, Education, Labor, and Pensions of the Senate an update to the report required pursuant to subsection (b) of this section, as added by section 6 of the Autism Cares Act of 2014 (Public Law 113–157), and in effect before September 30, 2019, concerning young adults with autism spectrum disorder and the challenges related to the transition from existing school-based services to those services available during adulthood.

Source credit: (July 1, 1944, ch. 373, title III, § 399DD, as added Pub. L. 109–416, § 3(a), Dec. 19, 2006, 120 Stat. 2828; amended Pub. L. 112–32, § 2(4), Sept. 30, 2011, 125 Stat. 361; Pub. L. 113–157, § 6, Aug. 8, 2014, 128 Stat. 1834; Pub. L. 116–60, § 3(d), Sept. 30, 2019, 133 Stat. 1113; Pub. L. 118–180, § 3(d), Dec. 23, 2024, 138 Stat. 2617.)

history & why it existsrecord from the source credit
  • 1944Enacted · Pub. L. 109-416 · 120 Stat. 2828
  • 2011Amended · Pub. L. 112-32 · 125 Stat. 361
  • 2014Amended · Pub. L. 113-157 · 128 Stat. 1834
  • 2019Amended · Pub. L. 116-60 · 133 Stat. 1113
  • 2024Amended · Pub. L. 118-180 · 138 Stat. 2617

A history note hasn’t been published yet. The record shows enactment by Pub. L. 109-416 on 1944-07-01.

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